Patient Support Organizations and Resources
Patient Support Organizations and Resources
Overview
Various resources are available to share with patients to help in their understanding of narcolepsy and its management.
Know Narcolepsy® provides educational information and resources for patients with narcolepsy to help them understand the impact of their symptoms and better manage day-to-day life. Patients with narcolepsy are encouraged to explore this online patient-directed resource.
Several patient support organizations provide resources to help patients talk with their healthcare providers and find support in their community.
 | A global nonprofit patient advocacy organization that focuses on connecting, empowering, and inspiring the rare disease community. |
 | A national nonprofit patient support organization focused on educating and empowering individuals with narcolepsy, as well as the public at large. Narcolepsy Network has gathered a list of reliable groups where individuals living with narcolepsy can share their experiences. Find a group » |
 | A nonprofit patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. |
 | A nonprofit organization dedicated to improving health and well-being through sleep education and advocacy. |
 | A nonprofit organization raising awareness about sleep health and sleep conditions, including programming to empower and support individuals with narcolepsy. |
 | A nonprofit organization that seeks to raise narcolepsy awareness, bringing direction to the search for a cure while providing a strong community of support to patients and caregivers. Wake Up Narcolepsy keeps an up-to-date list of their weekly online support group meetings that can be found here along with the latest news and educational events. |
 | A nonprofit organization aiming to raise awareness about narcolepsy and the mental issues people with narcolepsy (PWN) may experience. |
Harmony Biosciences is not responsible for the content of third-party sites.
